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First received: May 02, 2023

Clinical Trial: Natural History Study for Charcot Marie Tooth Disease

Study Status: Completed

Recruit Status: RECRUITING

Condition: Charcot-Marie-Tooth Disease

Study Type: OBSERVATIONAL


Official Title: Global Registry for Inherited Neuropathies Natural History Study for Charcot Marie Tooth Disease

Brief Summary: The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure.Participants will be asked to complete a Natural History Survey.

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