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First received: August 26, 2023

Clinical Trial: Lung Transplant READY CF 2: CARING CF Ancillary RCT

Study Status: Completed

Recruit Status: RECRUITING

Condition: Cystic Fibrosis

Study Type: INTERVENTIONAL


Official Title: Exploring Caregiver Needs While Supporting People With CF Learning About Lung Transplant

Brief Summary: Lung transplant is an option for treating end-stage lung disease in cystic fibrosis (CF).In the United States, more people with CF and low lung function die each year than undergo lung transplant.More than half of people with CF who die without a lung transplant were never referred for consideration.Patient preference not to undergo lung transplant may account for 25-40% of decisions to defer referral.Patients' health discussion networks function to support individuals in health related matters and may…

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