Clinical Trial: Lung Transplant READY CF 2: CARING CF Ancillary RCT
Study Status: Completed
Recruit Status: RECRUITING
Condition: Cystic Fibrosis
Study Type: INTERVENTIONAL
Official Title: Exploring Caregiver Needs While Supporting People With CF Learning About Lung Transplant
Brief Summary:
Lung transplant is an option for treating end-stage lung disease in cystic fibrosis (CF).In the United States, more people with CF and low lung function die each year than undergo lung transplant.More than half of people with CF who die without a lung transplant were never referred for consideration.Patient preference not to undergo lung transplant may account for 25-40% of decisions to defer referral.Patients' health discussion networks function to support individuals in health related matters and may…
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