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First received: October 19, 2023

Clinical Trial: Multicenter HomeVENT: Home Values and Experiences Navigation Track

Study Status: NOT_YET_RECRUITING

Recruit Status: NOT_YET_RECRUITING

Condition: Pediatric ALL

Study Type: INTERVENTIONAL


Official Title: Multicenter HomeVENT: Home Values and Experiences Navigation Track

Brief Summary: This is a multicenter study to test a decision-making support process for families and clinicians facing decisions about chronic home ventilation for a child.The investigators hypothesize that the intervention will increase family preparedness for decision-making and will improve clinician-family shared-decision making.Half of families will be assigned to "usual care" arm and half to the "intervention" arm.Intervention families will view the study website with study staff and will answer…

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