Clinical Trial: Multicenter HomeVENT: Home Values and Experiences Navigation Track
Study Status: NOT_YET_RECRUITING
Recruit Status: NOT_YET_RECRUITING
Condition: Pediatric ALL
Study Type: INTERVENTIONAL
Official Title: Multicenter HomeVENT: Home Values and Experiences Navigation Track
Brief Summary:
This is a multicenter study to test a decision-making support process for families and clinicians facing decisions about chronic home ventilation for a child.The investigators hypothesize that the intervention will increase family preparedness for decision-making and will improve clinician-family shared-decision making.Half of families will be assigned to "usual care" arm and half to the "intervention" arm.Intervention families will view the study website with study staff and will answer…
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