Clinical Trial: Heart Coherence Training on Vascular Ehlers-Danlos Syndrome Patients
Study Status: NOT_YET_RECRUITING
Recruit Status: NOT_YET_RECRUITING
Condition: Vascular Ehlers-Danlos Syndrome
Study Type: INTERVENTIONAL
Official Title: The Effects Of Heart Coherence Training On Patients With Vascular Ehlers-Danlos Syndrome (HEARTMATH)
Brief Summary:
Vascular Ehlers-Danlos Syndrome (VEDS) is caused by pathogenic variants of the COL3A1 gene, resulting abnormal Type III collagen protein.This impacts the body's connective tissue and makes people with VEDS at high risk of spontaneous aortic and arterial rupture, pneumothorax, and hollow organ perforation across the age spectrum.Given this risk and high potential for lethality, VEDS is considered the most severe type of Ehlers-Danlos Syndrome.In addition, many patients experience chronic pain and fatigue,…
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