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First received: July 10, 2023

Clinical Trial: Data Collection Protocol for Patients With Von Hippel Lindau Disease

Study Status: Completed

Recruit Status: RECRUITING

Condition: Von Hippel Lindau Disease

Study Type: OBSERVATIONAL


Official Title: Data Collection Protocol for Patients With Von Hippel Lindau Disease

Brief Summary: To collect information from patients with vHL disease.Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.

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