Clinical Trial: Data Collection Protocol for Patients With Von Hippel Lindau Disease
Study Status: Completed
Recruit Status: RECRUITING
Condition: Von Hippel Lindau Disease
Study Type: OBSERVATIONAL
Official Title: Data Collection Protocol for Patients With Von Hippel Lindau Disease
Brief Summary:
To collect information from patients with vHL disease.Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
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